Come All Ye Celiacs

LEAVE THE WHEAT IN THE FIELDS

Monday, August 2, 2010

Yellow nutrition






A lot of yellow nutrition











This is a perfectly natural gluten-free snack packed full of vitamins and omega-3 fatty acids!

Cantaloupe
Rice crackers (find at Whole Foods)
Flax seeds (find at Trader Joes)
Avocado dip
Acorn squash (steam or bake until soft)

Preparation time = 15-20 minutes

Monday, July 12, 2010

New Jersey















My emotions about having Celiac Disease are clearly tied to memories of my childhood -- food rituals, dining experiences, family. This is perhaps why last week's family reunion was by far my greatest dietary challenge.

The Wilberts love to eat. And my recent trip back to the Jersey Shore -- where I spent my summers as a child -- was a reminder of distinctive personalities and their voracious appetites.

Truly, nothing much but age has changed since our past summer visits together. The same family dynamics, same etiquette, and same dialects still present themselves both at the beach and picnic table, quite literally.

"The cousins," as my immediate family refers to them, are Southern. Kentucky met New Jersey and produced four offspring that now span from Indiana and Tennessee.

Billy, Danny, David, and Brian ("the cousins") are essentially just bigger, older versions of how I remember them as youth. I am still "Julie Poolie," the sister they never had. Jimmy (my older brother), is still just as popularly sought after now as then -- as if he's a movie star.

Aunt Sue continues to make a wonderfully thin-crusted blueberry pie. Dad still sneaks off to bakeries for a newspaper and almond pastry puffs. (Yes, plural). Jimmy still sleeps until noon, while everyone else consumes an entire morning assembling for the beach.

Cousin Billy, the eldest, still drives a minivan littered with empty soda cans and junk food wrappers. His lackadaisical attitude got us lost going to Jenkin's boardwalk amusements just like the olden days. Itching to arrive at the salt-smeared rides, everyone's "I know how to get there!" always trumped the last person's wrong directions. Only this time, Van Halen's, "Why Can't This Be Love" wasn't blaring on the car stereo.

Amidst the chaos, tempers, immature humor, and FOOD, a sense of being enclosed in some sort of Wilbert family cocoon has always engulfed me. It's as if nothing else outside this family exists when we're all together. No one is ever left out or lost and if you wander, they'll want to know where you are, where you were.

They'll come find you because it's always time to play or eat.

***
Thank goodness the salt water taffy was gluten-free because it just about killed me to be in those bakeries or at the picnic table eying Aunt Sue's pies, pretending hard that I didn't care. At least I could chew out my frustrations on that sticky, gummy taffy.

Better yet, I was able to enjoy Jersey peaches, corn, and beets. Dad boiled an entire bag of beets for me that I had later peeled and sliced for the potluck. They didn't go over very well. In fact, cousin David referred to them as "the Devil's nectar."

The cousins' children wanted to know why I couldn't eat certain things and they seemed to like learning this new word, gluten. But for the most part, the adults didn't discuss it unless I brought it up myself.

I came close to cheating on my diet when a lattice-topped strawberry pie (I think dad bought this from the bakery), sat like a centerpiece at my table. I actually asked if I could have a small piece but Troy was there to intercept, knowing full well how awful I'd feel days later.

***
It's been a week since I left new and old memories at the Jersey Shore. I'm home now in my controlled environment, not nearly exciting or chaotic as the Wilbert cocoon.

Sunday, June 13, 2010

June













Herb Centerpiece

This is what I've been doing with my time since graduating in May: gardening.

I've taken up landscaping the back yard — with little to no experience in 'greenscaping' at all. When we purchased our house last July, the back yard was just a big block of struggling sod. Troy likes the green space but I see budding potential. And so we've compromised: I develop the borders and he continues to mow a smaller chunk of sod.

I never hired a landscaper because I enjoy doing the work myself. But there have been weekend nights that I can barely climb the stairs after hours of pulling, hoeing, and hauling. I curse every time. Is this what almost 40 feels like?!

In the mix of landscape activities is my usual seasonal cycling activities. I've competed in two mountain bike races -- well one if you subtract the "DNF" (did not finish) at one mud-soaked event -- and some 20+ road rides.

Cycling hasn't been easy this year. Celiac disease and its typical unpredictable surprises have resurfaced.

For several weeks I've suffered extreme fatigue and body aches. I feel arthritic. I've had what feels like a golf ball stuck in my thyroid area for months. But all doctors have been able to detect (so far) is depleted ferritin. Ferritin, from what I understand, is a protein that stores and releases iron. In sum, I'm borderline anemic, which is a common outcome of this disease.

The lab results offer at least some explanation as to why I'm unable to maintain my cycling cadence for more than a mile or two.

As of now, I'm awaiting another tTG antibody test result. If my levels are up (1 to 3 is normal), I'm exposing myself to gluten again. And if that's the case, I'll be cursing at this high-maintenance diet more than my backbreaking landscape activities!

***
On a different note, I'm growing dwarf curry for the first time (see silver plant in photo). I've never cooked with curry but love the herb in moderate doses. Once I learn how to cultivate it, our chicken and rice dishes can be more flavorful.

That's all for now even though there's so much more to show and tell ...

Come back soon all ye celiacs!

Monday, May 17, 2010

Glutened

I had to force myself to run this evening -- to somehow climb my way out of a gluten coma through fitness.

Jogging was unbearable. Every sneaker stamp on the concrete sidewalk increased the pressure of what felt like a water balloon in my gut.

At every new corner I would accelerate my step, imagining the balloon popping and slowly letting out its watery contents. A sigh of relief would follow.

I don't know which is worse when "glutened" -- the fatigue or the gastric pain and bloating. I'd have to pick the former as the most debilitating to me because I thrive on being active, alert, and attentive.

How did I get glutened? It's been so long since this has actually happened to me.

Troy and I spent this past weekend up in Cable, WI for a mountain bike race. Cable is a sleepy northern Wisconsin town with few restaurants and grocery stores. Downtown Cable has a couple of charming country-like cafes that can easily satisfy a non-celiac bike racer. But for someone like me, you can only hope for a cup of coffee after a race...and that just doesn't cut it.

A bookstore/cafe led me to the best tasting pizza I think I have had since being gluten-free...and "they" said the crust was gluten-free. In fact, it was the only pre-made gluten free crust they had left. I was weak, tired, and hungry after a day of biking over rocky single track trails. My gluten-free guard was down.

"I'll take it!"

The pizza was unbelievably good.

But something kept telling me that it was in fact, too good to be gluten-free-true. The cooked pizza dough had formed into perfect peaks and the smell and taste reminded me of the "olden days" -- meaning my entire previous life.

It wasn't until after the first few bites did I realize that the pizza pie had a near perfect dusting of flour on its underbelly.

My husband's Greek cranberry bread had the same dusting of flour.

I tried to convince myself that maybe it had been dusted with potato flour. Or rice flour. Or tapioca flour.

I don't think so, Julie. It was too good. Too good.

Reality:

It emerges once again. Celiacs take a chance every time they eat out and employees in the restaurant business just don't get this disease. It's not necessarily their fault. They haven't been educated about food allergies and serious autoimmune-related food conditions.

That person preparing my "gluten-free" pizza probably didn't make the connection about the flour dusting. It was routine for them to prepare it this way. And my guess is that the flour was probably all over the counter tops and oven.

This whole incident is still emotional for me. I nearly cried when I took my first bite of that pizza slice. It was everything that I can't have anymore.

It was a reminder of how challenging gluten-free life can really be.

Wednesday, April 28, 2010

Monday Macaroons



Monday night was the first in weeks that I spent in my kitchen after being on Celiac files 'hiatus.'

It felt good to reconnect to gluten-free cooking.
I realized once again how important this activity (cooking) is towards sustainability of the diet. It seems that the more one wanders away from the kitchen, the more disconnected one could become from the relationship to the GFD. The cognizant intentions and efforts can decline rather quickly...

Coconut macaroons were produced with little foresight (only a quick peak at another one of those outdated cooking magazines found in my workplace lounge). Though I found the macaroons to be a sticky menace to my mixing bowls and baking sheets, they turned out quite delightful and were a huge hit at work the following day.
I've decided that I'll definitely make these again for my upcoming graduation party. Maybe the guests will want to stay?!


How to prepare:
1 14 ounce package of sweetened coconut flakes
3 1/4 cups of sweetened condensed milk
1 egg white
1/4 teaspoon salt
1 1/2 cups chocolate chips (and/or dried craisins or nuts)

*Beat egg white and salt until stiff peaks form
*Mix beaten egg white with other ingredients, stirring together
*Form into small balls (or regular cookie shapes)
*Align onto parched baking sheet (or lightly greased baking sheet)
*Bake for 25 minutes at 300 degrees
*Cool and store for up to 1 week




Sunday, April 25, 2010

Blogger Hiatus

The Celiac files blogger is back!

I've been on blogging hiatus since early March while wrapping up my graduate work followed by a vacation to celebrate my degree completion.

BTW, the only way to be truly gluten-free in the Florida Keys is to make your own food (you're just not going to find gluten-free restaurants or bakeries down there). :+O

Most exciting is that you can now tour this Web site to find videos and audio clips from world famous experts on celiac disease as well as patient stories. Not all of my 15 interviews over the last year are captured here but what I thought were the most compelling and informative pieces, are.

I would love to hear your feedback!

Sunday, March 14, 2010

www.celiacfiles.com

I haven't been posting as much lately because I'm nearing the final stages of my graduate school capstone, which I'm scheduled to present in less than two weeks. The capstone project is www.celiacfiles.com and much is still needed to make this Web site complete!

Visit again for regular postings after March 23 (the big day).

Coming attractions will include two outstanding audio clips with world-famous celiac researchers -- Dr. Joseph Murray from the Mayo Clinic and Dr. Alessio Fasano from the University of Maryland School of Medicine. Interestingly, both doctors left their celiac research in Europe initially assuming that prevalence of the disease would be far less here in the United States. How could rates be any higher than in Ireland or Italy?! Well, they're really not...and they'll tell you why in these interviews.

Also enjoy hearing from three celiacs I was honored to have interviewed in 2009. Wallace, Deborah, and Michael shared similar disease symptoms after years of misdiagnoses. All three maintain a fairly strict gluten-free diet.

And still, more to come are videos!

Have a good gluten-free week,
Julie